Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.


We need your help

Your contributions can help us establish a better understanding of the holistic experience of people living with Alpha-1-Antitrypsin Deficiency (AATD).

Over the course of our study, we will ask you about:

  • Your diagnosis journey
  • AATD therapies, medications and current symptom management
  • Unmet needs and communication with your provider(s)

Please help us out by filling out this survey . You are eligible to receive $125 after completing this survey. We appreciate your help.