Lori, founder of Minnesota-based advocacy organization, Alzheimer’s Speaks, discusses her mission of providing awareness and comfort through support, understanding, and education for families and professionals dealing with dementia.
Gabby McNary still remembers the day she tested positive for Huntington’s disease. “It was January of 2015,” she explains. "After a year of genetic testing, my neurologist told me that my results were in."
Spinocerebellar Ataxia (SCA) is a neurodegenerative disorder that affects the cerebellum, which is part of the brain that plays an important role in coordinated movements, speech, and balance. Cameryn, an SCA patient, shared her experiences with the condition and its impact on her daily life.
Cameryn’s diagnosis journey began with fluorescent lights and long wait times at the DMV. She had long anticipated the written test for her driver’s permit. When Cameryn returned in minutes, Laura knew something was wrong. Cameryn had failed her eye exam.