We sat down with Dr. Solyom, Senior Vice President of Rare Disease Development at Aceragen to discuss his work with pediatric patients and their mission to bring treatments to market for patients living with Farber disease, a rare, metabolic disease often misdiagnosed as JIA.
Patients Have Power
Where kick-ass patients tell honest, raw stories. Patients have voices, and their voices are power.
We're joined by Anne Marie Mercurio who is a Patient Research Advocate working primarily in oncology. We discuss the struggles of caregiving in the COVID-19 pandemic, listening to the patient experience and re-designing clinical trial protocol to fit patient needs.
The Clara team is proud to announce the winners of the Patients Have Power Writing Contest. Our judges were extremely impressed with the entries we received making the final decision a difficult one.