Pre-COVID: Recognizing the Value of Clinical ResearchJen recognized the power of clinical research long before the COVID-19 pandemic struck. When her son was born, she immediately signed him up to be in the University of...
Patients Have Power
Where kick-ass patients tell honest, raw stories. Patients have voices, and their voices are power.
In this episode, Aaron speaks with Laura and Cameryn, a mother and daughter duo, about a rare disease called spinocerebellar ataxia (SCA) and the way it's impacted their lives.
A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.
In this episode, we tackle the topic of increasing inclusivity in research. We're talking to three amazing women from the Accelerated Cure Project for MS. We cover the MS Minority Research Engagement Partnership Network.