“No, don’t look at that trial. People have been dying in it. I don’t think it’s a good fit for you.” Those were the words that I was speaking to my mother...
Patients Have Power
Where kick-ass patients tell honest, raw stories. Patients have voices, and their voices are power.
In this episode, Aaron speaks with Laura and Cameryn, a mother and daughter duo, about a rare disease called spinocerebellar ataxia (SCA) and the way it's impacted their lives.
A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.
In this episode, we tackle the topic of increasing inclusivity in research. We're talking to three amazing women from the Accelerated Cure Project for MS. We cover the MS Minority Research Engagement Partnership Network.