Knowledge is Power: One Woman's Journey From Adversity to Advocacy
How one woman helped herself — and others — through cancer treatment using research, advocacy, and acts of kindness.
advocacy
The Impact of a Trial: Kim Hartmann's Winning Entry
“No, don’t look at that trial. People have been dying in it. I don’...
The Kimberly Hartmann Award: A Tribute by Rie Lopez
The last time Kim Hartmann participated in the Patients Have Power writing contest, she wrote...
Battling COVID-19 as an Immunocompromised Patient: A Literal Fight for Life
At the height of a global pandemic, as an immunocompromised individual, 31-year-old Timothy found himself in the grips of COVID-19, a virus that was primarily touted as a danger to the elderly. Here, Timothy speaks candidly with Clara Health about his ordeal.
Jamie's Story: Participating in a Clinical Trial Through the COVID Craze
Jamie Koll, famous foodie instagrammer and rare disease patient advocate shares her experience participating in a clinical trial during the COVID pandemic.
The Ultimate Patient Guide: Tips and Tricks You Never Knew
Living with a chronic illness can be painful, frustrating, and exhausting. The Ultimate Patient Guide is a series of tips, tricks, and resources from patient advocate Alison Rothbaum aimed to empower people everywhere with the tools necessary to navigate their healthcare journey.
Advocating for Rare Disease in Mississippi
A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.
