At the height of a global pandemic, as an immunocompromised individual, 31-year-old Timothy found himself in the grips of COVID-19, a virus that was primarily touted as a danger to the elderly. Here, Timothy speaks candidly with Clara Health about his ordeal.
Jamie Koll, famous foodie instagrammer and rare disease patient advocate shares her experience participating in a clinical trial during the COVID pandemic.
Living with a chronic illness can be painful, frustrating, and exhausting. The Ultimate Patient Guide is a series of tips, tricks, and resources from patient advocate Alison Rothbaum aimed to empower people everywhere with the tools necessary to navigate their healthcare journey.
A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.