Announcing Trial By Fire: A Limited Podcast Series
Check out our very first episode: "Wolfram syndrome, Paralympic athletes, and all things patient engagement."
advocacy
Walking Hand in Hand with Dementia
Lori, founder of Minnesota-based advocacy organization, Alzheimer’s Speaks, discusses her mission of providing awareness and comfort through support, understanding, and education for families and professionals dealing with dementia.
Knowledge is Power: One Woman's Journey From Adversity to Advocacy
How one woman helped herself — and others — through cancer treatment using research, advocacy, and acts of kindness.
The Impact of a Trial: Kim Hartmann's Winning Entry
“No, don’t look at that trial. People have been dying in it. I don’...
The Kimberly Hartmann Award: A Tribute by Rie Lopez
The last time Kim Hartmann participated in the Patients Have Power writing contest, she wrote...
Battling COVID-19 as an Immunocompromised Patient: A Literal Fight for Life
At the height of a global pandemic, as an immunocompromised individual, 31-year-old Timothy found himself in the grips of COVID-19, a virus that was primarily touted as a danger to the elderly. Here, Timothy speaks candidly with Clara Health about his ordeal.
Jamie's Story: Participating in a Clinical Trial Through the COVID Craze
Jamie Koll, famous foodie instagrammer and rare disease patient advocate shares her experience participating in a clinical trial during the COVID pandemic.
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