At the height of a global pandemic, as an immunocompromised individual, 31-year-old Timothy found himself in the grips of COVID-19, a virus that was primarily touted as a danger to the elderly. Here, Timothy speaks candidly with Clara Health about his ordeal.
Jamie Koll, famous foodie instagrammer and rare disease patient advocate shares her experience participating in a clinical trial during the COVID pandemic.
Spinocerebellar Ataxia (SCA) is a neurodegenerative disorder that affects the cerebellum, which is part of the brain that plays an important role in coordinated movements, speech, and balance. Cameryn, an SCA patient, shared her experiences with the condition and its impact on her daily life.
Cameryn’s diagnosis journey began with fluorescent lights and long wait times at the DMV. She had long anticipated the written test for her driver’s permit. When Cameryn returned in minutes, Laura knew something was wrong. Cameryn had failed her eye exam.