Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50....
As a very rare genetic disease with patients spread out around the world, Farber disease is not always recognized by doctors and is often misdiagnosed as a form of arthritis.
What is Becker Muscular Dystrophy?Muscular dystrophies are genetic disorders that result in progressive weakening...
In this episode, our Trial By Fire duo interviews Scott Schliebner. Scott is a clinical...
We're joined by Anne Marie Mercurio who is a Patient Research Advocate working primarily in oncology. We discuss the struggles of caregiving in the COVID-19 pandemic, listening to the patient experience and re-designing clinical trial protocol to fit patient needs.
Check out our very first episode: "Wolfram syndrome, Paralympic athletes, and all things patient engagement."
The Clara Team is excited to introduce our limited podcast series: Trial by Fire, which...
