Congenital Adrenal Hyperplasia (also known as CAH disease) is a group of rare inherited autosomal recessive disorders that impact the functioning of the adrenal glands. The adrenal glands (also referred to as suprarenal glands) are...
On March 11, 2020, the World Health Organization declared COVID-19 a global pandemic. Shortly after, we launched World Without COVID (WWC) and connected over 10,000 individuals with clinical trials for diagnosis, treatment, and vaccine discovery.
In addition to experiencing stigma, discrimination, and a denial of civil and human rights, many members of the LGBTQ community are omitted from clinical trials. And when it comes to testing new drugs, therapies, and devices, there is a huge lack of needed diversity in clinical trials.
Lori, founder of Minnesota-based advocacy organization, Alzheimer’s Speaks, discusses her mission of providing awareness and comfort through support, understanding, and education for families and professionals dealing with dementia.
Gabby McNary still remembers the day she tested positive for Huntington’s disease. “It was January of 2015,” she explains. "After a year of genetic testing, my neurologist told me that my results were in."