In addition to experiencing stigma, discrimination, and a denial of civil and human rights, many members of the LGBTQ community are omitted from clinical trials. And when it comes to testing new drugs, therapies, and devices, there is a huge lack of needed diversity in clinical trials.
Lori, founder of Minnesota-based advocacy organization, Alzheimer’s Speaks, discusses her mission of providing awareness and comfort through support, understanding, and education for families and professionals dealing with dementia.
Gabby McNary still remembers the day she tested positive for Huntington’s disease. “It was January of 2015,” she explains. "After a year of genetic testing, my neurologist told me that my results were in."
Clinical trials are vital in preventing, detecting, and treating disease. Diversity is important in making sure we know all we can about a treatment’s benefits and risks, and the people enrolled in a clinical trial should represent the types of people who are likely to use the therapy.
The Clara team is proud to announce the winners of the Patients Have Power Writing Contest. Our judges were extremely impressed with the entries we received making the final decision a difficult one.