Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50....
As a very rare genetic disease with patients spread out around the world, Farber disease is not always recognized by doctors and is often misdiagnosed as a form of arthritis.
What is Becker Muscular Dystrophy? Muscular dystrophies are genetic disorders that result in progressive weakening...
In this episode, our Trial By Fire duo interviews Scott Schliebner. Scott is a clinical...
We're joined by Anne Marie Mercurio who is a Patient Research Advocate working primarily in oncology. We discuss the struggles of caregiving in the COVID-19 pandemic, listening to the patient experience and re-designing clinical trial protocol to fit patient needs.
Check out our very first episode: "Wolfram syndrome, Paralympic athletes, and all things patient engagement."
The Clara Team is excited to introduce our limited podcast series: Trial by Fire , which...
