Mother-Daughter Duo: Navigating Life with SCA
In this episode, Aaron speaks with Laura and Cameryn, a mother and daughter duo, about a rare disease called spinocerebellar ataxia (SCA) and the way it's impacted their lives.
Patients Have Power
Where kick-ass patients tell honest, raw stories. Patients have voices, and their voices are power.
Inside a family's fight against rare disease
Doctor after doctor, specialist after specialist, seemed to concur on only one point: They had never seen anything like what was happening to Santi.
Advocating for Rare Disease in Mississippi
A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.
Diversity in Clinical Trials
In this episode, we tackle the topic of increasing inclusivity in research. We're talking to three amazing women from the Accelerated Cure Project for MS. We cover the MS Minority Research Engagement Partnership Network.
Beyond Sweat: How Hyperhidrosis Shapes Everyday Life
Maria Thomas joins Lilly in honor of Hyperhidrosis Awareness Month to talk about her “life as a puddle” and inspiring advocacy work.
Healthcare is on the ballot, with Matt Cortland
Matt Cortland joins Aaron to talk about the upcoming midterm election and what's at stake for patients.
Chris Snider from Tidepool.org
Chris Snider, Type 1 diabetes advocate and Community Manager at TidePool joins Lilly on the Patients Have Power podcast.
