Where kick-ass patients tell honest, raw stories. Patients have voices, and their voices are power.
In this episode, I sit down with Anna Evangeline - aka Six Hips - about advocacy and her own health journey. Anna details her multiple surgeries, the anger that she still feels about the things that have happened, and how honesty and raw storytelling helps spread stories more effectively.
In this episode, I sit down with Michele Rhee, Enzyvant’s Head of Patient Affairs. Michele’s road to patient advocacy involves a cancer diagnosis, a collapsed lung, a heart tumor, tears shared with her mother, and a fight to get the treatments that she knew she needed.
In this episode, I talk with Aaron about my keynote speech at the Interdisciplinary Autoimmune Summit, where I spoke about the administrative burdens placed on patients.
In this episode, I share another glass (or two - definitely two) of wine with Aaron as we talk through common questions that patients tend to ask about clinical trials. Everything from "I don't want to be a guinea pig" to the surprising number of trials studying orgasms are discussed.
-------------------------------------------------------------------------------- Our latest Patients Have Power episode is called "Welcome to thirty." (You...
In this episode, Aaron and I chat about the exciting new therapies going into trials that focus on methods beyond drugs, such as stem cell, fecal transplants, diet, and lifestyle changes.
In this episode, I'm joined by Adi Goradia, an entrepreneur here in the lovely Silicon Valley (and Clara investor!). Adi speaks with us about taking a year off to fight a brain tumor with a clinical trial, multiple specialists, and a surgery on his brain...while he was still awake!
