Amyotrophic Lateral Sclerosis [https://guides.clarahealth.com/what-is-als/], also known as Lou Gehrig’s disease or motor neuron disease, is a progressive neuron system disease that causes the loss of muscle control. Over time, ALS...
Why do I choose to participate in clinical trials? Because I have a rare disease and I can help further the knowledge of this disease by donating my time and body to this cause. This is also why I am a patient advocate, to help other patients in their disease journey.
Clinical research offers hope for many people, because it helps us find better treatments. Clinical trials are the core of all medical breakthroughs, and volunteer participants are the most important part of any study.
Here are steps you can take to find pediatric clinical trials for your child, from learning about studies to connecting with the right physicians.
Even though parents and guardians must consent, or give permission, for their child to join a study, it’s important for children, when able to do so, to have a part in making a decision to join a study.
While like any treatment option there are inherent risks for participating in a study, it's essential to understand both the risks and how policies keep patient safety a top priority in clinical trials.
Most participants in a clinical research will be curious about the study results. This guide will walk you through each step of how you can find the published and publicly available clinical trial results.
