Where kick-ass patients tell honest, raw stories. Patients have voices, and their voices are power.
In this episode, I'm joined by Aaron, Clara's Head of Growth, to chat about the various impacts disease can have on a patient's financial stability and how we can come together to share resources, beat stigma, and help improve the healthcare landscape for all patients.
In this episode, we're talking with Rebecca Black, a patient who has multiple chronic illnesses. Rebecca had a couple misdiagnoses along the way, but by taking matters into her own hands, she got the right diagnosis and got the help that she needed.
In this podcast, Amber (Wheezy Nurse) and I chat about she focuses on the patient experience in her work as a nurse. Ya can't teach compassion, but maybe we can teach patient empowerment to everyone in healthcare!
In this episode, I talk with Brooke (also known as Crazy Creole Mommy). Brooke talks with us about her incredible journey into becoming a patient advocate, and tips for being a parent with a chronic illness.
In this episode, Aaron and I have a discussion surrounding his IBD, how he helped identify his new rare disease diagnosis, and the way that his life as a patient has inspired him to purse a career in scientific research.
In this episode, Kelby, an advocate, living with ankylosing spondylitis and Hashimoto's, joins me to dig into managing your career and chronic illness, and how having a chronic illness is like living with a roommate.
In this episode, Amanda Lustig, a fabulous patient advocate living with Crohn's Disease, talks about owning her journey, and supporting other patients in the process. Amanda is the Vice President of the Crohn's and Colitis Foundation of New England's Young Professional Group.
