Announcing Trial By Fire: A Limited Podcast Series
Check out our very first episode: "Wolfram syndrome, Paralympic athletes, and all things patient engagement."
Clinical Trials
“When Huntington’s Disease Comes, It Comes”
Gabby McNary still remembers the day she tested positive for Huntington’s disease. “It was January of 2015,” she explains. "After a year of genetic testing, my neurologist told me that my results were in."
Knowledge is Power: One Woman's Journey From Adversity to Advocacy
How one woman helped herself — and others — through cancer treatment using research, advocacy, and acts of kindness.
The Impact of a Trial: Kim Hartmann's Winning Entry
“No, don’t look at that trial. People have been dying in it. I don’...
Psoriasis Clinical Trials
Psoriasis is a long-term autoimmune disease which causes skin cells to grow up to 10...
Living with CAH: The Patient Experience
For those living with Congenital Adrenal Hyperplasia (CAH) and their caregivers, these words are probably...
Mitochondrial Myopathy Clinical Trials
Monica’s Story: A patient's experience with multiple clinical trials for a rare...
