What is Becker Muscular Dystrophy?Muscular dystrophies are genetic disorders that result in progressive weakening of skeletal and cardiac muscles. Duchenne muscular dystrophy (DMD) and Becker muscular dystrophy (BMD) are caused by mutations in the...
We're joined by Anne Marie Mercurio who is a Patient Research Advocate working primarily in oncology. We discuss the struggles of caregiving in the COVID-19 pandemic, listening to the patient experience and re-designing clinical trial protocol to fit patient needs.
Spruce Biosciences, supported by Clara Health, conducted a confidential survey of patients living with Congenital Adrenal Hyperplasia (CAH) to learn more about their experiences with CAH steroid treatment.